Guardian Jobs 2023 – Registry Operations

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Head of Registry Operations

Up to £59,000 per year (full time equivalent including £3000 if London office-based OR £450 per year if home-based)

Full Time – 35 Hours per week OR Part Time – 28 hours (salary will be pro-rata if part-time)

London Office-based or home-based*

Permanent contract

The Cystic Fibrosis Trust is uniting for a life unlimited for everyone affected by the condition. We are an agile, forward thinking, and ambitious organisation with a clear mission is to create a world where everyone living with cystic fibrosis will be able to look forward to a long and healthy life.

This is an exciting leadership opportunity to lead a highly motivated and passionate team within the Research & Healthcare Data Directorate at the Cystic Fibrosis Trust. The Head of Registry Operations will be part of Cystic Fibrosis Trust’s Data & Quality Improvement team, leading and implementing projects to maintain and develop the quality, integrity, and effectiveness of the UK CF Registry, and supporting the delivery of external research projects which maximise the impact of the Registry data to improve care and health outcomes for all people with CF in the UK.

You will have experience of working with large datasets in a healthcare or equivalent setting, with a good understanding of data governance and security. You will also have experience of setting up or supporting clinical trials and/ or post-marketing surveillance studies. You will play a lead role in managing relationships across a range of stakeholders, including clinical teams and some commercial partners, all of which are essential to the ongoing success of the UK CF Registry, and the delivery of high-quality programmes of work which benefit people with CF.

  • This role will require some travel across the UK.

We also offer a range of benefits, flexible working, plus opportunities for learning and development.

Please note: you will need to have the right to work in the UK before starting work for us and we will check this.

The Cystic Fibrosis Trust welcomes applications from candidates from all backgrounds and particularly from people with cystic fibrosis, disabled people, and Black, Asian and minority ethnic and LGBTQI+ candidates.

Closing date for completed applications is 5pm Monday 31 October 2023.

Interviews expected Wednesday 16 October & Thursday 17 October 2023.

We reserve the right to bring forward the closing date if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.


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